Family Resources

Cerebral Palsy Foundation

A nonprofit organization dedicated to improving the lives of individuals with cerebral palsy through research, innovation, and advocacy, with a focus on early detection and long-term outcomes.

Child Neurology Foundation

Provides education, family support, advocacy resources, and connections to trusted neurological care for children and families navigating complex neurologic conditions, while fostering collaboration across the child neurology community.

Epilepsy Foundation

Provides education, advocacy, and support for individuals and families affected by epilepsy, including seizure first aid training and community resources.

Family-Centered Care Task Force

Focused on advancing family-centered care in the NICU through collaboration between providers and families, recognizing caregivers as essential partners in shaping outcomes over time.

Hope for HIE

A global nonprofit supporting families affected by Hypoxic Ischemic Encephalopathy through education, community, and advocacy.

Partners Against Mortality in Epilepsy

A collaborative initiative bringing together clinicians, researchers, advocates, and families to improve understanding and prevention of epilepsy-related mortality, including SUDEP, through education, research, and cross-sector engagement.