Blog

  • Who Owns the Vernacular?

    There is a particular kind of language that develops when…

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  • Feeding After HIE: What NG Tubes, G-Tubes, and Oral Dysphagia Looked Like for Us

    Feeding challenges are common in the NICU, especially for premature…

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  • Life After the NICU: Survival Through Sustained Momentum

    Leaving the NICU is often framed as the goal. It…

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  • The Limits of Delegated Care

    Seizure Safety, School Nursing, and the Gap Between Policy and…

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  • Cerebral Palsy After Hypoxic Ischemic Encephalopathy: How it Evolved

    How It Emerged After Ophelia’s HIE diagnosis at birth, she…

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  • What is Hypoxic Ischemic Encephalopathy? A Caregiver-Focused Explanation

    When you first hear the term hypoxic ischemic encephalopathy, it…

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  • A Reflection on Resilience: Understanding Tulip Skin and the Journey to “Holland”

    I recently finished Tulip Skin by Laura Sánchez, and it was exceptional.…

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  • What Happens After HIE: A Timeline of Diagnosis and Understanding

    The Diagnosis Phase (HIE) Labor lasted three days, with constant…

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  • When a Mother Isn’t Trusted: Parent Experience in the NICU

    By that point in the NICU, my daughter was more…

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  • Between Critical Care and Daily Life

    I created something I wish existed when I was first…

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