Category: Life After NICU
-
Life After the NICU: Survival Through Sustained Momentum
Leaving the NICU is often framed as the goal. It feels like a milestone you fight toward until you finally reach it and realize it is not an ending at all. It is a transition into something far less structured. Inside the NICU, everything is monitored. There is a team. There is a plan, even…
-
Cerebral Palsy After Hypoxic Ischemic Encephalopathy: How it Evolved
How It Emerged After Ophelia’s HIE diagnosis at birth, she was followed by numerous specialities and every therapy under the sun. Around the time she was just over a year old, our PT and OT began circling around the word Cerebral Palsy without saying it directly. We adored our therapists. Ophelia loved working with them.…
-
A Reflection on Resilience: Understanding Tulip Skin and the Journey to “Holland”
I recently finished Tulip Skin by Laura Sánchez, and it was exceptional. What resonated with me most was not just the resilience woven throughout the autobiography, but the way she wrote about motherhood, birth, and survival with such artesanal softness and brutal honesty. As she worked through the moments surrounding both of her children’s births, I found…
The Neuro Care Bridge 