Tag: Neonatal Brain Injury
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What is Hypoxic Ischemic Encephalopathy? A Caregiver-Focused Explanation
When you first hear the term hypoxic ischemic encephalopathy, it usually isn’t in a calm or controlled setting. It’s often delivered quickly, during a crisis, and surrounded by unfamiliar language. Most parents hear the words before they have any framework to understand what they actually mean. This is a grounded explanation of what HIE is,…
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What Happens After HIE: A Timeline of Diagnosis and Understanding
The Diagnosis Phase (HIE) Labor lasted three days, with constant decelerations that never fully resolved. By Monday morning, just before shift change, everything escalated and we were rushed into an emergency C-section. Due to complications, I was put under anesthesia. I woke up with no baby. My husband was not told where she was. We…
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Between Critical Care and Daily Life
I created something I wish existed when I was first navigating my daughter’s diagnosis. As a parent, I’ve lived through both ends of the NICU spectrum—including a severe HIE course and the uncertainty that follows when the hospital stay ends but the questions don’t. There’s so much clinical knowledge in those moments. But very little…